Uniting Advocates: #AYACSM

August 8, 2014 3:04 PM

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If you follow adolescent and young adult (AYA) cancer organizations and advocates on Twitter, you may have seen the hashtag #AYACSM popping up in your feed over the last ten months. The hashtag was developed for the adolescent and young adult cancer societal movement by Maureen Sweet of Stupid Cancer (stupidcancer.org; @MaureenSweet), Billy Paymaster of Hope for Young Adults with Cancer (www.hope4yawc.org; @UKFann00) and myself of CancerFightClub, a program of Hope & Cope at the Jewish General Hospital in Montreal (www.cancerfightclub.com; @EK_Drake) back in November of 2013. The idea at the time was simple and relative to the reason why all hashtags are created: to develop something that we could use to search for and find each others' advocacy-related tweets. We initially referred to it as the bat signal of the AYA cancer movement -- something we could use to alert each other about a particular 140 character message that may be of interest. We did not realize at the time that what we had created to stay in touch with each other would be used around the world!

Shortly after we developed and started using the hashtag, we decided to make things official and filed to register #ayacsm with Symplur under their cancer tag ontology. What we began noticing was that the hashtag was being picked up by other organizations and it started cultivating a range of tweets...

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