‘Saving Eliza’: Family raising money for Sanfilippo Syndrome drug $530K away from goal

November 7, 2014 9:54 PM

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‘Saving Eliza’: Family raising money for Sanfilippo Syndrome drug $530K away from goal

When Glenn O’Neill and his wife, Cara, learned about a gene therapy treatment that could save their daughter’s life, they started a foundation and set off to raise the $2.3 million it would take to fund the manufacturing and clinical trial costs for the drug.

Today, thanks to about 26,000 donors from 70 different countries, they’re just $530,000 away from their goal.

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