Phila. family fights lung-donor rule for dying girl

May 27, 2013 2:53 PM

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Phila. family fights lung-donor rule for dying girl

"It's really sad that this child has waited" for 18 months, said Stuart Sweet, director of the lung-transplant program at St. Louis Children's Hospital. "But the issue here is really about how we designed this system to try to make it fair for everyone waiting for lungs. There are ways of working through this that don't involve breaking the rules."

Sarah's mother, Janet, who on Friday launched a last-resort public-relations blitz, disagrees: "The law is, in my view, age discrimination. I don't know if this is too late to make a difference for Sarah. But we'll keep fighting it."

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