Pennsylvania baby whose disease prompted improved newborn screenings dies

December 29, 2014 3:27 PM

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Pennsylvania baby whose disease prompted improved newborn screenings dies

The little Pennsylvania girl who inspired improved newborn screenings for a rare regenerative disorder has passed away, MyFoxPhilly.com reported.

Hannah Ginion, who was 1, had Krabbe disease, a condition that impacts about 1 in 100,000 individuals in the United States. Prior to her diagnosis, Hannah’s home state didn’t require doctors to test babies for the enzyme deficiency, but Pennsylvania has since instated “Hannah’s Law,” which adds the ...

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