Making Hope When the Medical System Can't

July 11, 2014 7:03 PM

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Making Hope When the Medical System Can't

Autonomic disorders, like POTS (Postural Orthostatic Tachycardia Syndrome, sometimes called simply Postural Tachycardia Syndrome) and Neurocardiogenic Syncope involve body systems that are supposed to work automatically -- controlling your heartbeat, blood pressure, breathing, thinking, temperature, digestion, vision and more -- but don't work as they should. Such conditions affect between 500,000 and 3,000,000 people in the United States. Some of these patients don't look sick, which is why their diseases are considered "invisible," despite the many potentially disabling symptoms that they produce.

A previous post identified the challenges of sustaining hope in the face of significantly delayed diagnoses for such patients, some taking more than 20 years to find out the cause of their physiological problems. This post reinforces the concerns about delayed diagnosis and begins to deal with the t...

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