How to Get Researchers to Notice an Ultra-Rare Disease

December 30, 2014 5:15 PM

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Kathy and Gary Brewer shortly before their marriage in 1998. That same year he developed the rare illness that led to his death in 2007.

It wasn't until she read her husband's autopsy report that Kathy Brewer learned his diagnosis -- a disease so rare that not one doctor had figured it out. His illness began in 1998, the year Kathy, then 38, and, Gary Brewer, then 58, got married. But Gary was busy with his job as a school superinten...

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