This Is FSHD | Max Adler

July 16, 2014 4:59 PM

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This Is FSHD | Max Adler

Growing up, I watched my mother and grandmother battle FSH muscular dystrophy. Not many people know about FSHD, but it affects more than 500,000 people around the world, and there is currently no treatment or cure. The disease attacks muscles in the face, shoulders and upper arms. It often affects people's ability to smile, lift objects and can confine one to a wheelchair as the disease progresses.

My grandmother, for example, had a motorized scooter attached to the back of her car. Every time she parked, I remember having to assist her with getting out of the driver's seat, which was no easy task, and having to help her walk ever so slowly to the back of the car to her scooter. She has to hol...

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