Children face rare diseases with bravery

February 28, 2014 1:17 PM

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Children face rare diseases with bravery

(CNN) -- Being diagnosed with a chronic disease -- any disease -- is hard. But imagine first spending months or years going from doctor to doctor, trying to figure out what's wrong. Then, in the end, being diagnosed with a disease few people have ever heard of.

Nearly 30 million people in the United States have a rare disease. What qualifies something as a rare? It's a specific disease or disorder that affects fewer than 200,000 Americans, according to the National Institutes of Health's Office of Rare Diseases Research. Scientists have identified more tha...

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