8-year-old ‘butterfly boy’ loses skin with every touch

January 20, 2015 5:50 PM

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8-year-old ‘butterfly boy’ loses skin with every touch

When Song Liuchen was born, he cried non-stop for 12 hours at the pain of being touched. Now 8 years old, he’s beating the odds while suffering from a rare condition that leaves his skin as fragile as a butterfly’s wing.

Liuchen suffers from epidermolysis bullosa (EB), an extremely rare inherited condition, Central European News (CEN) reported. For EB children, every touch causes pain. Liuchen has a particularly rare form of EB that leaves his skin fragile and easily broken and it frequently flakes away. The conditi...

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