The O'Neills' birthday celebration for their 5-year-old will be bittersweet this weekend. When they launched their fundraising campaign to find a cure for her disease nearly a year ago, they said they expected her to lose her ability to speak by this birthday.
Eliza can still talk, her father Glenn O'Neill told ABC News, but sometimes the words don't come as easily to her. And she seems to have stopped learning new things in the last three months. Some days, she can rattle off her numbers and the "Happy Birthday" song. Others, she can't.